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BRINGING NEW TECHNOLOGIES TO THE SEARCH FOR A CURE!

What is Scleroderma?

Scleroderma is a Greek word meaning “hard skin”. It is a chronic autoimmune disease that affects the body by hardening connective tissue. Connective tissue is widespread adding strength to organs and other parts of the body. Fibrosis (scar tissue) infiltrates the affected areas which, depending on the type of scleroderma one has, includes the skin and other vital organs including the lungs, digestive system, heart and kidneys. An estimated 2.5 million people worldwide suffer from this debilitating and sometimes life threatening disease. Currently, there is no cure and treatments are limited, mostly focusing on the affected parts of the body. There are some new medications in various stages of clinical trials and the US FDA approval process, but they are not “magic bullets” or cures. There is still a long way to go to finding a cure. The Global Scleroderma Initiative wants to find ways to improve the daily lives of patients, increase and accelerate research, and improve access to better care and information for patients no matter where in the world they may be.

 

 

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